The Scleroderma Association of NSW Inc. 

cannot offer direct advice on treatment or available therapies. 

It is up to each patient to make all relevant health decisions

In consultation with their own doctor or health professional.

International Scleroderma Network

Nonprofit international patient and medical organisation. Dedicated to research, support, education and awareness for scleroderma and related illnesses.
About Scleroderma http://www.sclero.org/medical/about-sd/a-to-z.html#top

International support in 22 languages http://www.sclero.org/index.html

Email: isn@sclero.org

Scleroderma Foundation - USA

The national nonprofit organisation in the U.S. representing and advocating for persons with Scleroderma.

Web:http://www.scleroderma.org

Canada

Email: info@scleroderma.ca

Web: www.scleroderma.ca

Juvenile scleroderma

http://www.sclero.org/support/groups/juvenile/a-to-z.html

 Juvenile Scleroderma Network

web: http://www.jsdn.org

Resource pages  http://www.jsdn.org/resourcelist.htm

Scleroderma Foundation – Juvenile Scleroderma

General inquiries Email: sfinfo@scleroderma.org

Web: http://www.scleroderma.org/medical/juvenile.shtm

Scleroderma and you
http://communities.msn.com/SclerodermaYou

The page below has many links in common with our website and more http://groups.msn.com/SclerodermaYou/links.msnw

Arthritis Foundation
U.S. arthritis foundation supporting research and community services, helping to find a cure for arthritis. Serving Americans with arthritis, their families and health professionals who help them.

Web: www.arthritis.org

Sjogrens Syndrome Foundation

Email:tms@sjogrens.org.
Web:http://www.sjogrens.org

Raynauds Foundation – does not seem to exist

About Raynauds http://www.healthline.com/sw/gsa-raynauds-phenomenon

Sarcoidosis, A Medical Mystery.

http://noairtogo.tripod.com/sarcoid.htm

Sarcoidosis  Awareness Webring

http://www.geocities.com/ddplace/sarcwebring.html

Sites belong to Becky Mitchell

email : BiblioBecky@nc.rr.com

United Kingdom
  
Raynaud's and Scleroderma Association

Email: info@raynauds.org.uk
www.raynauds.org.uk
UK based national charity and self help organisation, committed to supporting patients and carers who have these conditions.

Scleroderma Society

Email info@sclerodermasociety.co.uk
www.sclerodermasociety.co.uk
The Society aims to offer support to patients who often feel isolated, to increase awareness of the disease and to raise money for vital research.

 

Pulmonary Hypertension Association

Pulmonary Hypertension Association (PHA) seeks to find a cure for pulmonary hypertension and provides hope for the pulmonary hypertension community through  support, education, advocacy and awareness.

For information email candibleifer@earthlink.net
web: www.phassociation.org

 

The Scleroderma Association of NSW Inc. 

cannot offer direct advice on treatment or available therapies. 

It is up to each patient to make all relevant health decisions

In consultation with their own doctor or health professional.

Updated Updated Tuesday, 08. April 2008

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