The Scleroderma Association of NSW Inc. 

cannot offer direct advice on treatment or available therapies. 

It is up to each patient to make all relevant health decisions

In consultation with their own doctor or health professional.

 ‘Scleroderma OUTLOOK NEWSLETTER of SCLERODERMA ASSOCIATION of NSW Inc. No. 168 –August 2008 (Reprinted from: Hot News RSA, (UK), Vol. 2. (2008)) By Professor Chris Denton FRCP

Q. For the past three years, I have suffered from bowel leakage. This occurs after opening my bowels. It lasts for a few hours or even most of the day. I don't know that it has happened. it is very embarrassing. Can you explain why this happens and what is the cause?

A.  Thank you for highlighting this common symptom of established scleroderma, The problems that you describe are very common in scleroderma but are often not recognised because the link with the disease may not be appreciated and because this can be a difficult topic to talk  about.

Leakage occurs because there is weakness and scarring of the muscles at the lower end of the bowel which results in poor function of the valve or sphincter, at the lower end of the anal canal. Therefore after opening your bowels it is hard for the sphincter to form a complete seal and there is leakage. This is a symptom that should be discussed with your specialist, as there are several measures that can reduce or improve the symptoms or make them easier to live with.

Q. I have both Raynaud's and scleroderma and seem to be losing my hair but am not on medication. Why should this be?

A. hair loss can occur as a feature of scleroderma, SLE and other connective tissue diseases that may be associated with Raynaud's phenomenon. It may also result from the use of immunosuppressive drugs such as methotrexate or azathioprine. However, there are other medical causes to consider, including iron deficiency and thyroid problems. these can be assessed by your doctor. Sometimes specialists referral to a dermatologist is required.

The Scleroderma Association of NSW Inc. 

cannot offer direct advice on treatment or available therapies. 

It is up to each patient to make all relevant health decisions

In consultation with their own doctor or health professional.

Updated Updated Monday, 30. August 2010

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