Proudly Supporting the Scleroderma Community of NSW since 1979

Supporting the Scleroderma Community in NSW

The Scleroderma Association of NSW Inc. is a non-profit organisation whose mission is to raise support and awareness for Scleroderma patients. For more information on this chronic condition, please visit our about page in the menu bar, contact us through our upcoming events, support group meetings, or contact us page.

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About ASIC Scleroderma Research

The causes of Scleroderma are unknown. Scientists and medical investigators work to understand the condition. We support a coordinated approach to research into the cause and treatment of scleroderma. Through our research program funded by member states, corporate and individual sponsors, we do this. You can find a list of ASIG’s most notable publications between 2008-2020 here.

One of the most rewarding outcomes of ASIG’s activities has been improving the quality of care ASIG centres can deliver for people living with Scleroderma. Most centres have expanded their services to include specialist nurses and have become centres of excellence. This growth in patient numbers and experience has led to several centres being invited to participate in industry-funded clinical trials, allowing patients to access new therapies for the first time in many years.

Follow this link for 'Our Centres'.

At The Scleroderma Association of NSW Inc., we are always looking at funding research. We are currently funding research at St Vincent's Hospital with Dr John Moore & Dr Ross Penglase.

Stephanie Frade, an Exercise Physiologist, is also currently being funded to research safe exercises for people with Scleroderma. Exercise is essential for people with Scleroderma as it helps keep us moving, mobile & independent for as long as possible.

The Sclerodema Association of NSW Inc. is grateful for all donations.

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Scleroderma & NDIS

Finding it difficult to negotiate the NDIS? Please read the article by Accessible Action regarding this process.

Please note:

The Scleroderma Association of NSW Inc. is in no way affiliated with the organisation, Accessible Action. The information provided in this link is for your information only. The Scleroderma Association of NSW Inc. accepts no responsibility for the correctness of this information.