For updates and news of upcoming events:

Please see below or check our

CURRENT EVENTS page for details.

The Scleroderma Association of NSW Inc. is a charitable organisation whose aim is to increase support and awareness for those  afflicted with Scleroderma in the NSW Community. Please click on ABOUT in the menu bar for more information on this chronic illness,

or connect with us through our upcoming events, support group meetings or our Contact Us page.

What's News:

Coronavirus COVID-19 A message from our president can be found on this page. Please take the time to read it as it contains important information about our upcoming events.

The guys from 500 Thousand Steps for Scleroderma are at it again! Details on this page.

We recently celebrated our 40th Anniversary with a gala lunch at 99 on York. Photos to follow soon.

Thanks to all those who supported Scleroderma NSW by attending the fun day at Giants Stadium on Sunday 18th August, for the game between GWS Giants and Western Bulldogs. $400.00 was raised for Scleroderma NSW at this event. Look forward to seeing you there next season.

Scleroderma and the NDIS

Finding it difficult to negotiate the NDIS?

CLICK HERE to read an article


regarding this process.

Please note:

The Scleroderma Association of NSW Inc. is  in no way affiliated with the organisation, Accessible Action. The information provided in this link is for your information only.         The Scleroderma Association of NSW Inc. accepts no responsibility for the correctness of this information.

Click on the ndis logo


for details about this scheme.


We find ourselves in unfamiliar circumstances currently in our Nation and Worldwide.

As such, our Association, Scleroderma New South Wales, has decided to cancel our monthly Support Group Meetings until further notice. This decision has been taken in view of the Public Health Protocols now being put into place by the Federal and State Governments. Our Seminar planned for Saturday 27 June 2020, will also be postponed until a date in the future. It is with regret that this action has been necessary. Please be assured we are still here for you should you need advice, information, or just a friendly supporting voice at the end of the phone. Our committee member Fran, (0419 361 045) is happy to speak with you, as am I. Our office will still be open, but on a more limited basis. We will still publish our May Newsletter and keep you updated on “what’s new” with Scleroderma. Do follow all the hygiene and risk aversion recommendations and keep safe in your own environment, as we all come through this time safe and well.

Best regards to you all.

Marilyn Singer OAM
President – Scleroderma NSW

0414 390 449

2020 Support Group Meetings

Please note:

Until further notice all Support Group Meetings have been cancelled.  

Commencing February 2020 we will be meeting at a NEW venue:

Eternity Cafe

827-839 George Street, Sydney

The cafe is situated opposite the Concourse Central Railway Station

Meetings will commence at 12 noon on the following dates:

Saturday 28th March CANCELLED

(No meeting in April due to Anzac Day)

Saturday 23rd May CANCELLED

(Saturday 27th June- World Scleroderma Day & Seminar

to be held at Club York)- POSTPONED

Saturday 25th July TBA

Saturday 22nd August TBA

Saturday 26th September TBA

Saturday 24th October TBA

(Saturday 28th November- AGM & Christmas Party to be held at Club York) TBA

© 2015 Scleroderma Association of NSW Inc.  |   ABN: 94 989 217 688   |    CFN: 14819