For updates and news of upcoming events:
Please see below or check our
CURRENT EVENTS page for details.
The Scleroderma Association of NSW Inc. is a charitable organisation whose aim is to increase support and awareness for those afflicted with Scleroderma in the NSW Community. Please click on ABOUT in the menu bar for more information on this chronic illness,
or connect with us through our upcoming events, support group meetings or our Contact Us page.
What's News:
Coronavirus COVID-19 A message from our president can be found on this page. Please take the time to read it as it contains important information about our upcoming events.
CORONAVIRUS COVID-19 - ANNOUNCEMENT
We find ourselves in unfamiliar circumstances currently in our Nation and Worldwide.
As such, our Association, Scleroderma New South Wales, has decided to cancel our monthly Support Group Meetings until further notice. This decision has been taken in view of the Public Health Protocols now being put into place by the Federal and State Governments. Our Seminar planned for Saturday 27 June 2020, will also be postponed until a date in the future. It is with regret that this action has been necessary. Please be assured we are still here for you should you need advice, information, or just a friendly supporting voice at the end of the phone. Our committee member Fran, (0419 361 045) is happy to speak with you, as am I. Our office will still be open, but on a more limited basis. We will still publish our May Newsletter and keep you updated on “what’s new” with Scleroderma. Do follow all the hygiene and risk aversion recommendations and keep safe in your own environment, as we all come through this time safe and well.
Best regards to you all.
Marilyn Singer OAM
President – Scleroderma NSW
0414 390 449
Scleroderma and the NDIS
Finding it difficult to negotiate the NDIS?
CLICK HERE to read an article
by accessibleaction.com
regarding this process.
Please note:
The Scleroderma Association of NSW Inc. is in no way affiliated with the organisation, Accessible Action. The information provided in this link is for your information only. The Scleroderma Association of NSW Inc. accepts no responsibility for the correctness of this information.
We at The Scleroderma Association of NSW Inc. are always looking at funding research. We are currently funding research at St Vincent's Hospital with Dr John Moore & Dr Ross Penglase.
Stephanie Frade an Exercise Physiologist is also currently being funded to research exercises that are safe for people with Scleroderma. Exercise is very important for people with Sclerodema as it helps keep us moving, mobile & independant for as long as possible.
The Sclerodema Association of NSW Inc. are greatful for all donations.
Click on the ndis logo above
for details about this scheme.
2020 Support Group Meetings
Please note:
Until further notice all Support Group Meetings have been cancelled.
Commencing February 2020 we will be meeting at a NEW venue:
Eternity Cafe
827-839 George Street, Sydney
The cafe is situated opposite the Concourse Central Railway Station
Meetings will commence at 12 noon.