Patricia Rainbow-Noack (Trish) was diagnosed with Scleroderma in June 2016. A year later her family launched "500 Thousand Steps for Scleroderma" and walked a grueling 470km from Narellan to Ariah Park in the Riverina, to raise money for research into this crippling disease. Prior to the walk, Trish's daughter, Tamara approached Scleroderma NSW with a request for support and as such we were able to provide the necessary insurance cover for the walk, without which the event could not have taken place. 

This year Tamara's group are heading out again, this time walking from Port Macquarie to Narellan and once again we are proud to support them in this venture.

Please visit Tamara's mycause page for information and details of how you can make a donation to this worthy cause.

Please click on the images for information and insights into the journeys of "500 Thousand Steps for Scleroderma".

The Scleroderma Association of NSW Inc. is proud to be a part of the

500 Thousand Steps for Scleroderma project.

Click on the image above to visit the official mycause fundraising page for this year's event.

Help Tamara and her family make a difference!

Friday, 29 June 2018: World Scleroderma Day


4:30pm, 29/6/18: The team arrives at Narellan Hotel and and is welcomed home by an enthusiastic group of family and friends.  

Find them on:

Watch Tamara's Youtube video

"500,000 Steps for Scleroderma", June 2017

Living with Scleroderma: The disease that turns you into stone. ABC News, 6 June 2017

Family walks 470km to raise awareness and funds for Scleroderma.

Yass Tribune 24 May 2017